The study reports results from a series of focus groups in which 33 participants – current or recently quit smokers – explored personal experiences with and ideas about smoking and smoking cessation. The study was led by Jacqueline Halladay, MD, associate professor of family medicine, and published last week in Preventing Chronic Disease, the journal of the National Center for Chronic Disease Prevention and Health Promotion. The study’s other authors were Adam Goldstein, MD, MPH, a UNC Lineberger member, professor of family medicine and head of the Tobacco Interventions Programs at UNC; Maihan Vu, DrPH, MPH; Carol Ripley-Moffitt, MDiv, CTTS; Sachin K. Gupta, MD; and Christine O’Meara, MD.
Several themes emerged from focus group participant feedback. “Tobacco users often reported feeling shame, isolation, or disrespect,” Halladay said. “Most importantly, patients want to know that their physicians understand the experience of being a smoker.”
“Doctors also need to know that patients who smoke want and need to be treated with great respect.”
“Doctors also need to know that patients who smoke want and need to be treated with great respect,” added Goldstein.
The patients recommended that clinical care teams acknowledge the great challenges that smokers face today, that they embed their care approach within the addiction model, and really help them with quitting. “Patients who smoke want their doctors to not only talk with them about smoking at every visit, but they also want specific advice, positive encouragement and assistance, including medications,” said Halladay.
Focus group participants also discussed ideas to provide high value resources on a community level including telephone quitlines, comprehensive cessation specialists, connecting patients with those best suited to their unique situations and checking in with patients along the way to offer support and redirection if needed.
Finally, participants suggested new or enhanced means to measure tobacco cessation outcomes. Quality of life measures such as improved activity and energy levels, a sense of freedom in not having to plan around smoke breaks and a sense of pride in achieving a goal of becoming smoke free were all suggestions for creative, patient-centered measures that providers could incorporate to improve future cessation efforts.
“We need to measure outcomes that matter to patients including respect, encouragement, support, empowerment and not being judged,” said Goldstein.
Ultimately, the research team hopes the results of this study will encourage others “to engage in testing new patient-centered interventions, outcomes, and dissemination strategies to help smokers achieve tobacco-free lives.”
This work was supported by Health-e-NC, an initiative of the University Cancer Research Fund at the University of North Carolina at Chapel Hill.